WE ARE A SMALL CHARITY BASED IN SUSSEX, WE COVER THE WHOLE OF SUSSEX.
BUT WILL HELP ANYBODY THROUGHOUT THE WORLD REGARDLESS OF NATIONALITY/RACE/GENDER.
WE ARE RUN SOLELY BY VOLUNTEERS.
OUR AIM IS TO RAISE AWARENESS OF THIS MISUNDERSTOOD CONDITION.
WE FUNDRAISER THROUGHOUT THE YEAR TO ENABLE US TO PROVIDE A HELPLINE, HOSPITAL VOLUNTEERS, INFORMATION DAYS AND EPILEPSY AWARENESS TRAINING TO SCHOOLS COLLEGES AND WORK PLACES.
WE OFFER SUPPORT AND ADVICE FOR PEOPLE WITH EPILEPSY AND ALSO FOR THEIR FAMILIES AND CARERS.
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WE OFFER FREE I D BANDS/ PENDANTS/KEY SAFES/PULSE OXIMETER/PILLOWS/SUNFLOWER/CCTV MONITORS. WE ALSO LOAN BED MONITORS
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WE HAVE AN OPEN FACEBOOK PAGE THAT PUTS OUT UP TO DATE INFORMATION ON THE CONDITION AS WELL AS ADVERTISES OUR UPCOMING EVENTS.
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WE ALSO RUN A CLOSED FACEBOOK PAGE WHICH IS FOR PEOPLE WITH EPILEPSY THIS GIVES THEM A CHANCE TO TALK TO OTHER SUFFERS AND GET SUPPORT PRIVATELY.
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WE OUR A NON-PROFIT CHARITY, 100% OF YOUR MONEY IS USED TO MOVE EPILEPSYSUSSEX FORWARD, WE HAVE NO CEO THEREFOR WE PAY NO WAGES, WE ARE AN INDEPENDENT CHARITY WE HAVE NO ALLIANCE WITH ANY OTHER CHARITIES, WE WORK CLOSELY WITH THE LOCAL CONSULTANTS AND EPILEPSY NURSES,
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OUR COMMITTEE IS MADE UP OF 3 EXECUTIVE OFFICE (CHAIR-SECRETARY-TREASURER) AND TRUSTEES THAT FORM OUR COMMITTEE, WE MEET 4 TIMES A YEAR FOR COMMITTEE MEETINGS AND HAVE A AGM IN NOVEMBER ANNUALLY
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We our all volunteers who give there time for free because we our passionate about raising awareness and to one day find a cure, If you would like to volunteer for a hour or all day please contact us we would more then happy to see you
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Updated 2024
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New years message from the chair. 2020
This is our 5th year in control of EpilepsySussex ,
Sorry to say we have had a disappointing year in 2019,
Back In 2018 there were 68 registered epilepsy charities, by the end of 2019, 41 have been removed or stopped due to a lack of funding or no volunteers only 24 remain which 2 are overdue , 3 are linked, this makes us & you very lucky people to have this charity....
With new executive officers in 2015 we have transformed this charity and are now fighting epilepsy with a great reputation, this was only possible with a dedicated team at the beginning 2019,
Sadly at the end of 2019 some of our dedicated team left due to the heavy and very trying work, 2 others were asked to leave the charity
So YES some new volunteers would be awesome without your help we cannot carry on .
Back on a positive note thank you to the Epilepsy consultants / specialists / doctors / nurses in Hastings/ Brighton/ Worthing / Hayward's heath/ and many more around Sussex.
Also thank you to the retail stores and supermarkets who have supported us, The Coop , Waitrose, Tesco, Paperchase , Morisson, to name a few
Also to the many businesses who have giving the group free tickets to events and supported us, John Jackson Trust , British Airways, Barclays Bank, The Beacon, Brighton Greyhound Stadium, Hickstead Jumping Course, to name a few
And to all the people who believe in us as an epilepsy group thank you .
To the people who have funded us, raised money for us, and donated money a big thank you.
Our media pages are very popular with 3 Facebook pages, and a website running , which has been said to be an all-in-one epilepsy website and still improved every day. sadly our twitter page will close.
Our coffee meetings are always popular, getting to places like Eastbourne, Bexhill, Hastings, Brighton in 2019, We are looking to get to Heathfield, Lewes, Seaford, Haywards Heath in 2020 as well depending on time and other commitment's.
The new name is popular as this has helped spread our services throughout Sussex and hopefully gain us a few more volunteers.
We our also giving back to the community in safety aids / bed monitors / I D bands / Key safes / Pulse oximeters / CCTV, Ant-pillows,Bracelets, Pendants, Sunflower Scheme
The year 2019 was a busy year , spending was on Free equipment/ bulk merchandise all bought from a very limited fund, but we did under spend by £700 and was in credit from 2018 and we still maintain a healthy credit going into 2020, Our financial summary figures for the year ending 31/12/2019 can be viewed on the charity commission website over the next few weeks,
Last year 2019 was busy for us with doing events , bucket collections, ,and a load more epilepsy talks.,
This year 2020 we are looking to buy more free items to give back to the Sussex community , give more talks and give you lucky people even more safety aids.
2020 brings another new competition ,to enter simply purchase a EpilepsySussex hat or beanie, for more details go to our website. www.EpilepsySussex.com, the winner for 2019 can be seen on our website
We are looking to expand further throughout Sussex this year in events and buckets, so hopefully you'll see us in your town.
We are still looking for volunteers to help out throughout the Sussex area, we can offer first aid training, Seizure training, information training, we also give you a smart uniform, all food and drinks while at events, free travel to events when needed, plus a load of fun.
If you've got a few hours a month to help on our stalls, or giving information out or even doing bucket collections or maybe having a coffee meeting where you are able to raise funds.
Once again without your help we cannot carry on .
Please email us I am sure we can arrange an hour or two somewhere for you. It's great to meet new friends and have some fun so give it go and get involved.
Hope to see you soon .
Chair
Darren
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New years message from the chair. 2019
This year our 4th year in control, we have had some up and downs,
Back In 2015 there were 67 registered epilepsy charities, by the end of 2018, 37 have been removed or stopped due to a lack of funding or no volunteers only 27 remain, 3 our linked, this make us & you very lucky people to have this charity....
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With a change in executive officers in 2015 we have turned the charity around and are now fighting epilepsy with a great reputation, this was only possible with a dedicated team, so a big thank you to the volunteers whom have given their time to help the group carry on.
And a big thank you to the Epilepsy consultants / specialists / doctors / nurses in Hastings/ Brighton/ Worthing/ Haywards heath/ and many more around Sussex
.
Also thank you to the retail stores and supermarkets who have supported us,
Also to the many businesses who have giving the group free tickets to events, ect
And to all the people who believe in us as an epilepsy group thank you .
To the people who have funded us, raised money for us, and donated money a big thank you.
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Our media pages are very popular with 3 Facebook pages, twitter page and a website running , which has been said to be an all-in-one epilepsy website and still improved every day. www.EpilepsySussex.com
Our coffee meetings are always popular, getting to places like Eastbourne, Bexhill, Hastings, Brighton in 2018, We are looking to get to Heathfield, Lewes, Seaford, Haywards Heath in 2019 as well depending on time and other commitment's
.
This year will see changes in what we do and the way we do things.
The new name seems very popular as this will help spread our services throughout Sussex and hopefully gain us a few more volunteers.
We have also started to give back to the community in safety aids / bed monitors / I D bands / Key safes / Pulse oximeters / CCTV / Pillows / Sunflower
The year 2017 was a very busy year and a big spending year , with a van / gazebo/ other equipment/ bulk merchandise all bought from a very limited fund, but we did overspend by £1.200 but was in credit from 2016 and we still maintain a healthy credit going into 2018, Our financial summary figures for the year ending 31/12/2017 can be viewed on the charity commission website
Last year 2018 was also very busy for us with setting an office up, new uniforms, and still doing events , bucket collections, ,epilepsy talks.,we also managed to give a donation to Shrewsbury epilepsy support group to help it set up in that area, But our financial figure for 2018 was of a positive outcome and are in credit , Our financial summary figures for the year ending 31/12/2018 can be viewed on the charity commission website in the next week.
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This year 2019 we are looking to buy a new van, give more talks and give you lucky people even more safety aids.
2019 brings another new competition ,to enter simply purchase a epilepsysussex hat or Bennie, for more detail go to our website. www.EpilepsySussex.com
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We are looking to expand further throughout Sussex this year in events and buckets, so hopefully you'll see us in your town.
We are still looking for volunteers to help out throughout the Sussex area, we can offer first aid training, Seizure training, information training, we also give you a smart uniform, all food and drinks while at events, free travel to events when needed, plus a load of fun.
If you've got a few hours a month to help on our stalls, or giving information out or even doing bucket collections or maybe having a coffee meeting where you are able to raise funds
.
Please email us I am sure we can arrange an hour or two somewhere for you. It's great to meet new friends and have some fun so give it go and get involved.
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Note yes there will be some typos but do i care ,
Hope to see you soon .
Darren
Chair
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