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​How can we help you
 
 
 
 
 
 
 
 

    Total for 2024       
      SOS Bands 13                 CCTV Monitors 2        Pulse oximeters  3  
      Key safes 1      
Bed monitors 1  
Sunflower Scheme 17 
Sleep safe pillows 14 
Disposable Pillow Cases 8

    Total for 2022       
      SOS Bands  27                 CCTV Monitors 11        Pulse oximeters  32  
      Key safes 9      
Bed monitors 1  
Sunflower Scheme 43 
Sleep safe pillows 21 
Disposable Pillow Cases 29

    Total for 2023       
      SOS Bands 17                 CCTV Monitors 7        Pulse oximeters  15  
      Key safes 2      
Bed monitors 1  
Sunflower Scheme 27 
Sleep safe pillows 22 
Disposable Pillow Cases 39

    Total for 2020       

      SOS Bands  33                CCTV Monitors  8       Pulse oximeters  28  

      Key safes 11      

Bed monitors 1 

Sunflower Scheme 116

 Sleep safe pillows  24

Disposable Pillow Cases 3

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    Total for 2021       
      SOS Bands  17                 CCTV Monitors 3        Pulse oximeters  9  
      Key safes 3      
Bed monitors 0  
Sunflower Scheme 47 
Sleep safe pillows 13 
Disposable Pillow Cases 9

   Total for 2018       
    SOS Bands 42            CCTV Monitors 2      Pulse oximeters 13
      Key safes 14        Bed monitors 1

   Total for 2019       

   SOS Bands 49            CCTV Monitors 5      Pulse oximeters  41

      Key safes 23        Bed monitors 1

Sunflower Scheme  12

Sleep safe pillows 19 

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As recommended by

EpilepsySussex

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Sleep safe pillow

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LIVE COUNT Unlimited

GIVING FREE 14

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20% DISCOUNT - EPILEPSY SUSSEX WEBSITE VISITORS

 

https://www.sleep-safe.co.uk/epilepsysussex/

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Sleep-Safe Several-Use Non-Woven Disposable Pillow Cases

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These pillow cases can each be used a number of times to reduce the frequency of laundering of Sleep-Safe pillows if dribbling, excessive salivation or skin shedding is a problem, or in respite settings where caring for successive short-term users demands frequent bedding changes. The cases are made from soft, flame retardant non-woven material which is comfortable and hygienic, and laboratory tests have demonstrated negligible effect on the anti-suffocation properties of Sleep-Safe pillows

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LIVE COUNT AVAILABLE   Unlimited 

LIVE COUNT

ON LOAN n/a 

Free Medical SOS Bracelets or Pendants




A medical condition or allergy can affect how you're treated in an emergency, so it's important to let people know.  
silicone wristbands, silver bracelets, Pendants, titanium bracelets, engraveable, beaded, leather,
Velcro,Pendants and more, all designed to carry and share your vital information with medical professionals. 
Please take a look at the range.
EpilepsySussex will order the ID band, and post  to your home address, 
We accept applications with any diagnosed  form of epilepsy
EpilepsySussex will make  a decision as soon as possible based on availability and criteria 
Applications can be made at any time. We only accept applications from families on a low income and proof of this will maybe required. Please check our our Guidelines for applications at the bottom of the page


 
Please take a look at the links below for your style  

http://www.theidbandco.com/Medical-Bracelets

www.universalmedicalid.co.uk/cat_uk/medical-ID-bracelets-62

https://www.universalmedicalid.co.uk/cat_uk/medical-ID-necklaces-63

https://www.mediband.com/gb/custom-ID/#p=2&gan_data=true

LIVE COUNT
GIVING FREE 13

LIVE COUNT AVAILABLE   2

LIVE COUNT
ON LOAN 1

LIVE COUNT
GIVING FREE 02

       On loan CCTV monitor





 

 High Quality
It uses a CMOS sensor to provide clear and sharp images and built-in IR-CUT filter shows true colors day and night.
Equipped with infrared LED arrays, it is capable of night vision recording to ensure a high performance even in the dark.
  3.6mm lens offers a large viewing angle to cover a wide range.
Sleek and compact design, easy to install Features:

Network connection no need PC.
Smart Link: Network setup with wifi, 
Support micro SD card up to 128G for video and picture storage(SD Card 32GB TF card can be recorded up to 15 days.)
Supports monitoring via computer, IPhone, and Android smartphones
Automatic IR LED illumination for night vision
Build in WiFi module, support 802.11b/g
Support motion detection, send alarm information by Email.
Pan tilt: Pan:355° / Tilt:90°
Mobile view allows you to realize remote view & recording anywhere & anytime
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EpilepsySussex will loan a bed monitor or CCTV monitor on a three month reviewable basis up to a six month limit

EpilepsySussex will deliver the bed monitor or CCTV monitor and set up the equipment

Proof of epilepsy diagnosis will be sort by a letter either from a consultant or from the DWP this is only applicable for CCTV and bed monitors.  

A signed and dated form will be required from  yourself to confirm item has been  delivered / set up/ shown how to use / caring for item/ returning  item/ any damage to be paid for either to mend or replace.

We accept applications with any diagnosed  form of epilepsy.

Please check our our Guidelines for applications at the bottom of page

On loan bed monitor

LIVE COUNT AVAILABLE   0 

LIVE COUNT
ON LOAN  1

LIVE COUNT

GIVING FREE n/a

The Emfit Epileptic Tonic-Clonic Seizure Monitor is designed for monitoring and

detecting seizures with muscle jerking of a sleeping person with epilepsy. Patented sensor

technology detects when a person has continued abnormal movements over a pre-set mount

of time, and triggers a notification.

It can also give notification when a person leaves the bed and there are no more

micromovements, such as those caused by a person's breathing or heart beating.

This can be especially useful for those who have a tendency to wander.

The seizure monitor consists of a film-like bed sensor and a control unit. The dynamic sensor

pad is placed under the mattress and detects even the slightest movements of the person

lying above it, including micromovements caused by breathing and heart beating.

When a person has faster and longer continued movements than pre-set thresholds,

the notification is triggered. The system can also notice light movements,

making it suitable for small children.

The controller features a built in alarm with adjustable volume. It can also interface

with other systems and calls can be sent to various accessories such as pagers or

even to a nurse call system installed within a hospital or care home. The monitor can

be placed next to the bed or mounted on the wall using the included fastening bracket

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Guidelines for applications

applications can be made at any time. We only accept applications from families on a low income and proof of this will be required.

We accept applications with any diagnosed  form of epilepsy.

EpilepsySussex will make  a decision as soon as possible based on availability and criteria.

EpilepsySussex will loan a bed monitor or CCTV monitor on a three month reviewable basis up to a six month limit.

EpilepsySussex will deliver the bed monitor or CCTV monitor and set up the equipment

Proof of epilepsy diagnosis will be sort by a letter either from a consultant or from the DWP this is only applicable for CCTV and bed monitors.  

A signed and dated form will be required from  yourself to confirm item has been  delivered / set up/ shown how to use / caring for item/ returning  item/ any damage to be paid for either to mend or replace

Please check our our Guidelines for applications at the bottom of page

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                            Free Key Safe

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A key safe provides a convenient method of externally storing the keys to your

property and eliminates the need to leave keys under doormats, issue multiple

sets of keys and allows immediate access to emergency services and care workers.

A  Key Safe grants you greater flexibility and freedom, allowing you to

concentrate on the more important things in life. Family members no longer

have to carry spare keys, you’ll never be locked out again and children can let

themselves in after school.

You may have been recommended a Key Safe by your  Support group , GP, District Nurse or care provider. This is because a Key Safe is ideal for anyone who requires multiple visitors but either cannot or has difficulty getting to the door. The  Key Safe has also been proven to save time and save lives by granting immediate, authorised access in the event of an unforeseen emergency

 

Aluminium, 4-digit combination key safe. Holds up to 5 standard house keys. 

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Recodeable combination key box, designed to secure keys on the outside of premises.

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Easy recoding mechanism offering 10,000 combinations.

  • Weather-Resistant

  • Stores up to 5 Standard Door Keys

  • Easy to Mount

  • Keys supplied

  • You may have two phone numbers (this can a family/friends/EpilepsySussex)

  • on the outside of the key safe asking people to call for key safe 

  • number to gain entry

  • We also offer a 24/7 phone number , this is to be phoned by the emergency services for the key safe number

  • Please see our other web page on  24/7 Emergency contact 

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  • EpilepsySussex will order the Key safe, and post  to your home address, 

  • Fitting to the outside of you property can be arranged, if a friend or partner cannot fit

  • We will also fund the extra key for the safe     

  • We accept applications with any diagnosed  form of epilepsy

  • EpilepsySussex will make  a decision as soon as possible based on availability and criteria 

  • Applications can be made at any time. We only accept applications from families on a low income and proof of this will be required. Please check our our Guidelines for applications at the bottom of the page 

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LIVE COUNT

ON LOAN n/a 

LIVE COUNT AVAILABLE   3

LIVE COUNT
GIVING FREE 1 

pulse oximeter reading

LIVE COUNT AVAILABLE   1

LIVE COUNT

ON LOAN n/a 

LIVE COUNT 3

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What is an oximeter used for?

A pulse oximeter is a device intended for the non-invasive measurement of arterial blood oxygen saturation (SpO2) and pulse rate. Oximeters are widely used in hospitals, medical clinics, operating rooms, and homes. Both oxygen saturation level and pulse rate are vital signs of a patien

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How to measure oxygen levels?

Quick Answer. A normal oxygen level is 95 to 100 percent oxygen, as measured by pulse oximetry, says the Mayo Clinic. A pulse oximeter is a small device which clips on a finger and measures oxygen saturation in the blood, a measurement which is usually considered to be the equivalent of blood oxygen levels.

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What is a normal pulse ox reading?

A: According to the Mayo Clinic, a normal pulse ox reading is between 95 and 100 percent. The pulse ox reading tells of the saturation of oxygen in a person's blood. The reading is taken with a pulse oximeter, a device which is placed on a person's finger.

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We accept applications with any diagnosed  form of epilepsy

EpilepsySussex will make  a decision as soon as possible based on availability and criteria 

Applications can be made at any time. We only accept applications from families on a low income and proof of this will maybe required. Please check our our Guidelines for applications at the bottom of the page

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The new Sunflower Lanyard Scheme

 

Assisting adults and children with hidden disabilities

The Sunflower Lanyard Scheme® was originally created to act as a discreet sign to staff and work colleagues that the wearer (or somebody who is with them) has a hidden disability and requires additional assistance. 

The Sunflower Lanyard Scheme® was first launched at Gatwick Airport in May 2016. It has now been adopted in the UK by most of the major airport, supermarket and railway companies, as well as in the NHS. Each day, many more organisations are joining the scheme and it is also starting to be known globally. With this increased awareness, Sunflower Lanyard wearers benefit more widely from help being offered to make their daily living a little easier.

How can wearing the Hidden Disabilities Sunflower benefit you?

Wearing the Sunflower Lanyard indicates to people around you that help may be required, and that help may be different for each person. You can use the Hidden Disabilities Sunflower to tell people about the type of assistance you need – it may be as simple as a little more time. There is no qualifying list to being able to access a lanyard as we do not exclude people who have yet to be diagnosed and whose daily life is made more challenging by their hidden disability. If you feel that you are unable to have a conversation with a member of staff due to your condition, perhaps consider writing down the type of help you might need so that you can hand it to them

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LIVE COUNT AVAILABLE   Unlimited  

LIVE COUNT
GIVING FREE  77

LIVE COUNT

ON LOAN n/a 

Please take a look at the range.

EpilepsySussex will order the Sunflower  , and post  to your home address, 

We accept applications with any diagnosed  form of epilepsy

EpilepsySussex will make  a decision as soon as possible based on availability and criteria

Please also note most supermarkets customer service desk stock them, just ask for a free lanyard

Why do we loan and not give .

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We believe that from studies at EpilepsySussex that people with epilepsy do not necessarily need equipment on a long term basis, often things like bed monitors and CCTV equipment are needed as a diagnostic tool to find out if the person is having nocturnal seizures if they are not then the equipment does not need to be there if this is the case something like an anti suffocation pillow would suffice and this equipment could benefit another person in the diagnosis of nocturnal seizures. As this equipment can last for years we can use it to benefit more than one person. We loan our equipment as a diagnostic tool there are other charities that specialize in providing equipment for you to keep. who we can recommend.

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Prior to any application, the applicant must have been a closed group member for a minimum of three months, This is to minimise exploitation.

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EpilepsySussex 

Guidelines for applications for bed monitor or CCTV monitor

 

1) Applications can be made at any time. We only accept applications from families on a low income and proof of this will be required please download application form.

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2) We accept applications with any diagnosed  form of epilepsy.

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3) EpilepsySussex will make  a decision as soon as possible based on availability and criteria.

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4) EpilepsySussex will loan a bed monitor or CCTV monitor on a three month reviewable basis up to a six month limit.

 

5) EpilepsySussex will deliver the bed monitor or CCTV monitor and set up the equipment

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7)  Proof of epilepsy diagnosis will be sort by a letter either from a consultant or from the DWP applicable for CCTV and bed monitors.  

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8) A signed and dated form will be required from  yourself to confirm item has been  delivered / set up/ shown how to use / caring for item/ returning  item/ any damage to be paid for either to mend or replace.

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EpilepsySussex 

Guidelines for applications for ID Band/pulse oximeter/ pendants / pillow / sunflower or Key safe:

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(1) EpilepsySussex will order the ID band/pulse oximeter / pillow / sunflower  post  to your home address,

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(2)Please note if you require a PENDANT /PULSE OXIMETER / ID BAND/KEY SAFE / PILLOW / SUNFLOWER . Proof of epilepsy diagnosis will be sort by a letter either from a consultant or from the DWP

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(3)Please note once you have received the item please inform us and also place a post on our facebook page ,this is to show are  funders that we are honouring our commitment to supply pillow/ sunflower /the pulse oximeter /bands and safes.

  

(4)EpilepsySussex will post the key safe to your home address to be fitted by a friend or partner ,if you cannot fit the key safe to the outside of you property then  fitting can be arranged by EpilepsySussex ,

We will also fund the extra key for the safe

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If you our needing a Bed alarm  on a more permanent basic then click the links below

The Daisy Garland

The Daisy Garland
01803 847 999
There may be a waiting list for alarms.

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https://www.safetysystemsdistribution.co.uk/emfit-tonic-clonc-seizure-monitoring/

These are to buy , Sorry we cannot fund this

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To apply please ether download the form  and printout then scan back

or

 download-fill out-email back

 to

EpilepsySussex@gmail.com

or

Print out / post back (Address on request )

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Updated April 2024

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