Frequently asked questions

What is your helpline hours

Monday - Friday 11.00-21.00

Do you hold events / coffee meetings

Yes please keep an eye on this website under 'events' or our facebook page

Can i get a free ID medi band or a free key safe

Yes please check this website under 'what we can do for you'

Can i volunteer for EpilepsySussex

Yes please contact us at

What is the money raised used for

To suppy free ID bands and free key safes, we also loan out bed monitors and CCTV monitors, to run a helpline, to provide free presentations, to run a walfair van, an updated webisite, We pay NO wages we our all volunteers.

How long does it take for medication to reach a peak

A dose of medication will reach a peak, or maximum, level in the blood 30 minutes to 4 or 6 hours after it is taken.
The peak time varies for different drugs.
For example a liquid, tablets, capsule or slow-release form.
In general, liquids are absorbed quickly.
Medications in slow-release forms are absorbed gradually over hours and produce the steadiest levels in the blood. These slow-release forms can be taken less often, once or twice a day.
Eating before a dose may also affect how long it takes to reach a peak level.

Can my doctor prescribe me the same brand name so the phamacist will give me that AED everytime

Yes ask your doctor to prescribe you the brand name so the pharmacist will give you that AED If your doctor writes the generic name of the AED on your prescription, ask if it can include the name of the specific drug company. Try to use the same pharmacist each time as they may have a record of your AEDs and may ensure that you receive the same AED

What would you recommend for an emergency app on my phone

This application will create a permanent and visible from the Lock screen notification (only from Android Lollipop).
This notification will contain all necessary information and your contacts in case of emergency .

What Category is my AED

Category 1 – phenytoin, carbamazepine, phenobarbital, primidone
For these drugs, doctors are advised to ensure that their patient is maintained on a specific manufacturer’s product
Category 2 – valproate, lamotrigine, perampanel, retigabine, rufinamide, clobazam, clonazepam, oxcarbazepine, eslicarbazepine, zonisamide, topiramate
For these drugs, the need for continued supply of a particular manufacturer’s product should be based on clinical judgement and consultation with patient and/or carer, taking into account factors such as seizure frequency and treatment history Category 3 - levetiracetam, lacosamide, tiagabine, gabapentin, pregabalin, ethosuximide, vigabatrin
For these drugs, it is usually unnecessary to ensure that patients are maintained on a specific manufacturer’s product unless there are specific reasons such as patient anxiety and risk of confusion or dosing errors