Question 1

What is your helpline hours

Accepted Answer

Monday - Friday 11.00-21.00

Question 2

Do you hold events / coffee meetings

Accepted Answer

Yes please keep an eye on this website under 'events' or our facebook page

Question 3

Can I fundraise for you

Accepted Answer

Yes of course, please contact us for the best way to raise funds

Question 4

What is the money raised used for

Accepted Answer

To suppy  free ID bands and free key safes, we also loan out bed monitors and CCTV monitors and life saving Pillows, to run a helpline, to  provide  presentations, to run a walfair van,  an updated webisite,
We pay NO wages we our all volunteers.

Question 5

Can i volunteer for EpilepsySussex

Accepted Answer

Yes please contact us at EpilepsySussex@gmail.com

Question 6

Can i get a free ID medi band or a free key safe

Accepted Answer

Yes please check this website under 'what we can do for you'

Question 7

How long does it  take for medication to reach a peak

Accepted Answer

A dose of medication will reach a peak, or maximum, level in the blood 30 minutes to 4 or 6 hours after it is taken.
The peak time varies for different drugs.
For example a liquid, tablets, capsule or slow-release form.
In general, liquids are absorbed quickly.
Medications in slow-release forms are absorbed gradually over hours and produce the steadiest levels in the blood. These slow-release forms can be taken less often, once or twice a day.
Eating before a dose may also affect how long it takes to reach a peak level.

Question 8

What Category is my AED

Accepted Answer

Category 1 – phenytoin, carbamazepine, phenobarbital, primidone
For these drugs, doctors are advised to ensure that their patient is maintained on a specific manufacturer’s product
Category 2 – valproate, lamotrigine, perampanel, retigabine, rufinamide, clobazam, clonazepam, oxcarbazepine, eslicarbazepine, zonisamide, topiramate
For these drugs, the need for continued supply of a particular manufacturer’s product should be based on clinical judgement and consultation with patient and/or carer, taking into account factors such as seizure frequency and treatment history
Category 3 - levetiracetam, lacosamide, tiagabine, gabapentin, pregabalin, ethosuximide, vigabatrin  
For these drugs, it is usually unnecessary to ensure that patients are maintained on a specific manufacturer’s product unless there are specific reasons such as patient anxiety and risk of confusion or dosing errors

Question 9

Can my doctor prescribe me the same brand name so the pharmacist will give me that AED every time

Accepted Answer

Yes ask your doctor to prescribe you the  brand name so the pharmacist will  give you that AED
If your doctor writes the generic name of the AED on your prescription, ask if it can include  the name of the specific drug company.
Try to use  the same pharmacist each time as they may have a record of your AEDs and may ensure that you receive the same AED

Question 10

What would you recommend for an emergency app on my phone

Accepted Answer

This application will create a permanent and visible from the Lock screen notification (only from Android Lollipop).
This notification will contain all necessary information and your contacts in case of emergency .
https://play.google.com/store/apps/details?id=com.lagache.sylvain.ice_android

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